Chairman's Message

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We have had a very busy time that has been a product of hard work, commitment, consultation, collaboration and not a small measure of patience and determination over the past 18 months to deliver improved outcomes for those impacted by GBS/CIDP. A big thank you to our Committee who continue to step up to the mark, exceed expectations and break new ground in this space.

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Latest News

2019 International Rare Disease Day

on . Posted in News

2019 International Rare Disease Day

There are around 7000 rare diseases and disorders affecting somewhere around 300 million people worldwide.

Many rare diseases are believed to be genetic, caused by changes in genes or chromosomes and passed on from one generation to the next. In some cases, they occur randomly in a person who is the first in the family to be diagnosed.

There are around 7000 rare diseases and disorders affecting somewhere around 300 million people worldwide.