Chairman's Message

Welcome to our website.mark-200x200

There may be many reasons for you reading this message. However, it is highly likely you, a relative, friend or perhaps a patient has been diagnosed with GBS/CIDP or a related disorder, such as Miller Fisher Syndrome and you are seeking some answers and insight into these rare mysterious disorders.

Hopefully, this website and the GBS Association of NSW can ease your concerns and support you along the road to recovery.

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Latest News

Rare Disease Day

on . Posted in News

Rare Disease Day logo

GBS/CIDP is classified internationally as a 'rare disease’ and Rare Disease Day is celebrated each year on the last Tuesday in February.

Often the most common questions relating to GBS/CIDP are “What is it”, “Why have I never heard about it” and “Why do we not know about this devastating condition” etc.

Funding for CIDP Research

on . Posted in News

Professor Matthew Kiernan

The National Health and Medical Research Council (NHMRC) has announced a grant for the research into the treatment of CIDP.

The research team will be headed by Professor Matthew Kiernan (pictured).

NDIS Year-one Summary Available

on . Posted in News

report-cover-sheet

An important report for us was tabled in Federal Parliament on 29 October 2014. This report summarises the first year of operation of the NDIA (National Disability Insurance Agency) and the National Disability Insurance Scheme (NDIS).