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2019 International Rare Disease Day

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2019 International Rare Disease Day

There are around 7000 rare diseases and disorders affecting somewhere around 300 million people worldwide.

Many rare diseases are believed to be genetic, caused by changes in genes or chromosomes and passed on from one generation to the next. In some cases, they occur randomly in a person who is the first in the family to be diagnosed.

There are around 7000 rare diseases and disorders affecting somewhere around 300 million people worldwide.

Rare Disease Day

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Rare Disease Day logo

GBS/CIDP is classified internationally as a 'rare disease’ and Rare Disease Day is celebrated each year on the last Tuesday in February.

Often the most common questions relating to GBS/CIDP are “What is it”, “Why have I never heard about it” and “Why do we not know about this devastating condition” etc.