Have you or someone you care for used an Immunoglobulin Product?
The key conditions we are interested in are:
- Chronic inflammatory demyelinating polyneuropathy (CIDP)
- - Myasthenia gravis
- Other neurological conditions receiving immunoglobulin treatments.
NPS MedicineWise is looking for people or carers with the above conditions to attend a focus group. The aim of the focus group is to help us understand what types of information, tools and resources are helpful for people with these conditions.
We are looking for people from diverse backgrounds, all ages, both new Ig users and experienced users
We are looking for people to participate in video / telephone conference and to share their experience of Ig treatments
Both current and former (in the past 3 years) Ig users of intravenous and sub-cutaneous are welcome.
Those who take part will be compensated for their time.
As the news and reaction to the COVID-19 virus changes daily, as you would understand, your association is not able to provide the latest news and advice. However, we can advise members where to go to continue to receive the latest updates rather than follow the story as covered by the media, for daily updates we suggest you visit the NSW Health https://www.health.nsw.gov.au/Infectious/diseases/Pages/coronavirus.aspx.