I may not be able to do the physical things I would like to and now have to wear a splint on my right leg for support and drop foot. My right side was mainly affected and still suffer chronic weakness even today. I can no longer work but have the love and support of my family and my husband retired from the services to help me at the ripe old age of 45 and we spent the next 6 years caravanning around Australia, and recently went on a 6 week vacation to the United States even going to the Grand Canyon and Alaska. Was very tiring BUT ‘I did it’. My interests now besides 3 adorable grandchildren are playing middle eastern music on my Djembe drum and helping run an online chat-room for ladies who need support for whatever reasons.
I don’t know what is in the future so am so glad I put one foot in front of the other and take each new obstacle in my path. I am in awe of all the GBS sufferers who develop full blown symptoms and am aware of how very lucky I was to not suffer the full force of this cruel disease.
Thankyou for listening to my story and always sending positive thoughts to everyone.
Sandra Cluley - December 2012